Position Description: The new Executive Director will be an
entrepreneurial and driven professional who will serve as a
strategist, champion, and leader for the Lipedema Foundation
(“LF”). The Executive Director will partner closely with the
Founder/Current Executive Director, the Chief Science Officer, and
the broader team to design and execute LF’s strategy and plan. This
is an exciting moment to be a part of something truly unique in
women’s health and to guide the Foundation in ensuring collective
awareness, accessible diagnostic tools, and available patient
treatments for lipedema.
More specifically, the Executive Director is charged with the
following key responsibilities:
Develop and execute a strategic plan in conjunction with the
Founder, Chief Science Officer, and team with a focus on
scientific/medical research, grant-making, awareness, and
organizational and systems growth.
Prioritize and balance gaps and opportunities; lay the
groundwork for complex, future large- scale research projects and
key operational and organizational projects that serve the
Champion: Significantly grow awareness around lipedema among
multiple stakeholder groups including researchers, surgeons,
doctors, therapists, and the general public.
Serve as one of the thought leaders, public faces, and
ambassadors for the Foundation to the public and partners via
conferences, retreats, webinars, and other opportunities.
Leader: Lead a small team of professionals and partner closely
with the Founder in a culture that promotes a high level of
collaboration, mutual respect, humility, and excellence.
Build a network of collaborative scientific investigators,
clinicians, and educators to extend the Foundation’s reach as well
as work to formalize LF’s Advisory Board and its governance.
Qualifications: LF seeks a strategic leader with superior
communication, team management, and relationship building skills.
The new Executive Director will have a systematic approach to
developing and driving robust strategies and plans and a deep
interest in and passion for women’s health.
Key Experiences and Attributes Include:
An energetic leader with a minimum of 10 years of leadership
experience from disease- focused foundations, non-profits,
start-ups, or corporate sector; an understanding of collaborative
grants and associated processes required.
A critical thinker, able to create a vision, develop a plan,
marshal resources, and execute on objectives utilizing a proactive
and entrepreneurial mindset.
Open, inclusive, adaptable, and motivating with experience
managing an efficient and collaborative team.
Experience creating and implementing top-notch systems,
operations, processes, and programs as well as an understanding of
boards and governance.
Eloquent and poised to serve as an ambassador as well as distill
complex scientific information into clear and compelling
Personable, humble yet confident, and a natural relationship
builder able to seamlessly transition between scientists, patients,
Organized in both the breadth of the big picture and executing
the depth of the small details with the self-directed drive to
ensure accountability and success.
Innately motivated by the mission and goals of LF and excited to
be a continuous learner around lipedema.
Approximately 25% travel; ability to work one day a week from
home or Manhattan.
Salary and benefits are competitive and commensurate with
This post will be available until September 19, 2020 or until
LF is an Equal Opportunity Employer and encourages candidates of
all backgrounds to apply.
The NIH is dedicated to building a diverse community in its
training and employment programs.
National Institutes of Health | Department of Health and Human
Services | USA.gov